When we were first admitted to the hospital the doctors kept saying that you had to be really flexible with the plan of care. It all depends on how the labs look. Well they were right. Critter go labs drawn yesterday and they called to say things look good but he needs a few more days at home before they want to start chemo again. So the new plan is LP and bone marrow aspirate on Friday and we will be admitted for more chemo on Tuesday. We can't decided if this is good or bad. We love the time at home but at the same time we are ready to move on and get this over with! The good part is he no longer has to be on IV antibiotics. One of these doses was supposed to be given at 6:00 am and me and Jason were starting to argue over whose turn it was to get up and give the meds so this is a good change. Maybe this has happened to teach me patience. I hate being patient.
you definately have to be patient! Odette was always to low on counts or way to sick to keep on going. Enjoy the time at home. In time you will make it through all the hospital treatment! Good luck with it all. Since Odette doesn't eat, I have to get up every morning with her at 5:45 to start feeds. Yuck! I feel your pain! :)
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