We love being home! After 25 days in a little hospital room my little house feels like a mansion! The first day home Critter had a hard time adjusting. He is number 3 on the list again instead of number one all the time and he has a hard time with it. It is really hard to know when to stick to your guns and let him cry it out in his room and when to give in because he is probably not feeling well. We had behavior issues in the hospital too. He yelled at a nurse to get him a coke one day. So he didn't get his coke for 6 hours until he said please. You feel rotten telling him that he has to be polite to get food and drinks and when he says he would rather starve you say go ahead and try I'll just run nutrition through your line! HA!

At home the other day we had a fight because he wanted to draw blood out of his line. He has seen it done enough he thought it would be cool to play with his blood. I hid all the syringes and he threw a temper tantrum screaming "I want my blood" and I was telling him his blood had to stay in his body. I felt like an idiot having that fight. This picture is when he threw a fit about something and wouldn't put his clothes on. He had antibiotics due and usually he sticks them in his pocket while he plays but because he was refusing to wear clothes he put his hat on and told me to clip them on his hat. I finally said whatever and left him in his room naked.

Even after all of the bratty stuff we would much rather be doing it all at home. Every day he gets a little better with the rules and he feels great for the most part. The docs took him off his TPN and sent us home and told us to call in a day or two if he didn't eat. I was really nervous but once he got around his brothers he started eating! We were so happy and even though he doesn't eat much he drinks carnation instant breakfast a lot and he isn't losing weight so we are OK.

Well were supposed to go back on Friday but our last labs said his anc was 300 which means his body is still recovering. They don't want to admit us until his anc is over 8-900. The new plan is a bone marrow aspirate on Friday to see if we are in remission and then they will admit us on Wednesday. So more time at home! YEAH!