The skinny on Bone Marrow

Well we met with the Bone Marrow Team today to discuss the transplant. We have had so many wonderful people who have offered to donate bone marrow for Critter. I am so humbled by how many people would donate their own bone marrow for my son. Just typing this brings tears to my eyes. I asked the bone marrow team about having other people tested and they said people can be tested and put on a national registry if they would like but the don't do specific testing just for Critter. They have already input his specifics into the registry and we should be receiving news on if there is a match on the registry by next week. They will match 10 different factors so there can be a "perfect match" which is what they are hoping to find or a 9 out of 10 match. In rare cases they have done something like a 7 out of 10 match but they prefer a closer match.


And then there is Ruby. We are still waiting to see if she is a match for Critter. If she is they will seriously consider using her bone marrow. Ruby has been our ray of sunlight through this. We have been able to bring her up to stay with us during the day and then send her home at night. Critter loves having her up here. He asks to hold her constantly. He kisses her and helps me feed her. They are so cute together and she is the perfect baby. I put her in her vibrating chair the other day while Critter got his dressing changed (this takes 3 people. 2 holding him down and 1to change the dressing. He screams the whole time) and she drifted off to sleep sucking her thumb in her chair. I love having her up here with me but after meeting with the bone marrow team today we realized she will not be able to come up here during that time. We learned a lot today about bone marrow transplants and I could type 5 pages on it but we will break it down into post as we go. All I can say is its going to make the last cancer treatment look like a cake walk. We have about a 45% chance of everything working. We are trying hard to stay positive and have heard many success stories that give us hope. We know that this is out of our hands now and we must rely on the Lord. We have been so blessed and protected in our lives we hope our prayers will be answered again.